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ABOUT US

A little bit about us and how Bravery Mountain came to be....

We are a family of five:  Cora is sandwiched in the middle between older brother Nolan and younger brother Leo.  Carly is a pediatric emergency physician and Michael runs a handyman business.  As a family, we love being outdoors whether it is summer or winter, rain or shine...there is no weather condition that will scare us away!  We especially enjoy hiking and golf, but really gravitate towards any outdoor activity.  Nolan is an avid golfer (and absolutely loves trying to best his family members) and also enjoys playing baseball, watching football, and reading chapter books.  Cora loves all things sparkle, but also loves dragons, insects, snakes, baking, and is always coming up with new creative projects.  Leo has been termed the family goofball due to his ability to make everyone laugh, and loves 'anything with wheels!' 

 

We would have considered ourselves a 'normal family' until the day our whole world changed, when Cora was diagnosed with leukemia (B-ALL) at 5 years old, just before the winter holidays.  This changed our lives forever. Her diagnosis brought us all great sadness and pain, but over time has also taught us that there is always something to be thankful for, and has taught us to find hope and joy wherever we can.  Her diagnosis and treatment have been a central part of our lives and we have all been constantly amazed by her bravery, insight, and perseverance.

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A short while into her treatment course, Cora was struggling (as any 5-year-old would) to understand the scope of her treatment, and this is when we came up with a mountain metaphor to explain her leukemia.  This has really helped her (and her brothers) to understand her treatment path and has empowered her as she goes through every phase of treatment.  We explained to Cora and her brothers that her leukemia journey is like a mountain, with some steep and difficult parts, and some downhill or easier parts.  Cora really took to this metaphor and she just ran with it, creating her own version of "Cora's Leukemia Mountain", complete with many fireballs that she needs to dodge, a unicorn friend to guide her through tough parts, butterfly forests when things are good, and gem rewards to collect along the way.

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Cora chose Mount Mauna Kea because she had seen it on a nature show and learned it is the tallest mountain from seabottom (and a volcanic mountain which makes it cool!)  The way Cora explains her mountain is that it is really steep and uphill at the beginning at diagnosis and in the early phases of treatment, with many obstacles and fireballs for her to dodge.  But with every doctor visit and phase, she moves forward and eventually she gets over the top.   Then there is the downhill, which is easier, but still has obstacles and takes a long time to get through.  Cora describes that she has had to dodge many fireballs along the way; she says the biggest fireball was the one coming for her before she knew she had leukemia, but she dodged it by figuring out that she had leukemia and by being brave when starting treatment.  Other big fireballs have been times she has not felt well, has had to do tough treatment days, or needed hospitalization…she decides.  She imagines that there are gem prizes along the way that she collects with every big step she takes forward (every time she has a big treatment day or has to be hospitalized, etc).  She also imagines unicorns and butterflies along the way that help her get through the tough times.

 

This metaphor became something we talked about so much that Cora eventually drew the mountain she was imagining and we actually framed the drawing and labelled the phases of treatment at the bottom of the drawing.  It hangs outside her room and she literally moves a little stick-figure of herself on the glass every time she feels she has done something tough to move her forward.  It has been a metaphor that she has really latched on to and has helped her so much to visualize her long treatment path, and it has empowered her to give herself credit for all of the amazing things she has had to do along the way.  

More about Cora

Mountain Sunset
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